Navigating Dravet Syndrome: A Guide for Caregivers on Rare Epilepsy | Science 37 #clinicaltrials
1:14
Navigating Dravet Syndrome: A Guide for Caregivers on Rare Epilepsy | Science 37 #clinicaltrials
151 views8 months ago
YouTubeScience 37
⏱️⚡ When a seizure happens, every second matters. A Seizure Action Plan helps families, schools, and caregivers respond with clarity and confidence. During Seizure Action Plan Awareness Week (Feb 9–16, 2026), we’re coming together as a community to make sure more children are protected and supported—at home, at school, and everywhere in between. 💜 ✅ Start or update your Seizure Action Plan 👉 https://tr.ee/wvlt4wrrvx Seizure Action Plan Coalition #SAPAW2026 #SeizureActionPlan #EpilepsyAwareness
0:19
⏱️⚡ When a seizure happens, every second matters. A Seizure Action Plan helps families, schools, and caregivers respond with clarity and confidence. During Seizure Action Plan Awareness Week (Feb 9–16, 2026), we’re coming together as a community to make sure more children are protected and supported—at home, at school, and everywhere in between. 💜 ✅ Start or update your Seizure Action Plan 👉 https://tr.ee/wvlt4wrrvx Seizure Action Plan Coalition #SAPAW2026 #SeizureActionPlan #EpilepsyAwareness
536 views8 months ago
FacebookDravet Syndrome Foundation
We’re counting down to the 2026 DSF Biennial Conference in Orlando on June 25-27, 2026! ☀️ Families, researchers, clinicians, and advocates will all come together for a weekend that strengthens our community and moves us forward. Watch this video to hear why the DSF Conference matters so much to our staff and the families we serve.🦋 From educational sessions and clinical updates to social events, sibling camp, and more — this is where connection and impact meet. 💜 Stay tuned for more info comi
2:45
We’re counting down to the 2026 DSF Biennial Conference in Orlando on June 25-27, 2026! ☀️ Families, researchers, clinicians, and advocates will all come together for a weekend that strengthens our community and moves us forward. Watch this video to hear why the DSF Conference matters so much to our staff and the families we serve.🦋 From educational sessions and clinical updates to social events, sibling camp, and more — this is where connection and impact meet. 💜 Stay tuned for more info comi
684 views1 year ago
FacebookDravet Syndrome Foundation
Our goal is to raise awareness, foster understanding, and support the incredible warriors and families affected by Dravet Syndrome. On Dravet Syndrome Awareness Day, it is extra important to help spread the word about this rare disease. 🦋 Dravet Warriors face daily challenges with remarkable strength, resilience, and bravery. Their stories inspire us and remind us of the importance of community, research, and support. Here’s how you can make a difference today: Learn: Educate yourself and other
1:30
Our goal is to raise awareness, foster understanding, and support the incredible warriors and families affected by Dravet Syndrome. On Dravet Syndrome Awareness Day, it is extra important to help spread the word about this rare disease. 🦋 Dravet Warriors face daily challenges with remarkable strength, resilience, and bravery. Their stories inspire us and remind us of the importance of community, research, and support. Here’s how you can make a difference today: Learn: Educate yourself and other
766 viewsJun 23, 2024
FacebookDravet Syndrome Foundation
Have your say on Dravet Syndrome research
0:55
Have your say on Dravet Syndrome research
780 views8 months ago
YouTubeDravet Syndrome UK
Effects of Zorevunersen in a Patient with Dravet Syndrome
0:43
Effects of Zorevunersen in a Patient with Dravet Syndrome
2.7K views7 months ago
YouTubeNEJM Group
Episodio 15 | Nuevos retos en el síndrome de Dravet 💜 | Podcast Raras pero Reales
0:39
Episodio 15 | Nuevos retos en el síndrome de Dravet 💜 | Podcast Raras pero Reales
868 views3 months ago
YouTubeFundación Síndrome de Dravet
1:52
New gene therapy slashes Dravet seizures
390 views7 months ago
YouTubeMyersMedical
1:31
Hope for Dravet Syndrome Patients | New Epilepsy Drug Explained #drabid #drugs #epilepsywarriors
106 views7 months ago
YouTubePHYSIOMED ACADEMY
0:31
Mikel Merino con la Fundación Síndrome de Dravet 💜
1.1K views3 months ago
YouTubeFundación Síndrome de Dravet
0:48
¿Por qué hacer tus prácticas en la Fundación Síndrome de Dravet?
4 views6 months ago
YouTubeFundación Síndrome de Dravet
1:37
50 años sin diagnóstico claro: la historia de María | Síndrome de Dravet
915 views3 months ago
YouTubeFundación Síndrome de Dravet
1:17
Intense 6-Minute Seizure During Spring Break: Cooper's Battle with Dravet Syndrome
3.2M views6 months ago
TikTokdaddypapaandcooperboy
1:16
Cooper's Journey with Dravet Syndrome: Seizure Challenges
7M views10 months ago
TikTokdaddypapaandcooperboy
1:04
Tow Mater Backup Plan for Special Needs Child | Mater #16
5.4M viewsSep 20, 2024
TikTokbseizurefree
6:01
Coping with Dravet Syndrome: Support and Reassurance
7.1M views9 months ago
TikTokgeorginacoulson20
1:00
Understanding Dravet Syndrome: Causes, Symptoms, and Treatment
2.7M viewsNov 18, 2023
TikTokdrsermedmezher
1:27
Understanding Dravet Syndrome and Its Impact
1.4M viewsFeb 21, 2025
TikTokbseizurefree
1:08
Our Journey with Dravet Syndrome and Epilepsy
1.8M viewsMay 29, 2025
TikTokdaddypapaandcooperboy
0:46
Understanding Dravet Syndrome: Fatal Mistakes and Medication Dangers
1.9M viewsFeb 15, 2023
TikTokalina_dravetwarrior
See more
Static thumbnail place holder